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The Paradox of Hope: Journeys through a Clinical Borderland, by Cheryl Mattingly
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Grounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances.
- Sales Rank: #906954 in Books
- Brand: Brand: University of California Press
- Published on: 2010-12-02
- Original language: English
- Number of items: 1
- Dimensions: 9.00" h x .70" w x 6.00" l, .88 pounds
- Binding: Paperback
- 288 pages
- Used Book in Good Condition
Review
"This work of outstanding scholarship should be a great addition to collections of medical anthropology and health studies."--"Choice"
From the Inside Flap
"The Paradox of Hope shows how clinicians, families and patients employ hope in their illness narratives and treatment stories, and indeed, in their lives in general. A serious and revealing ethnographic exploration of hope as the making up of life."Arthur Kleinman, Esther and Sidney Rabb Professor of Anthropology, Harvard University
"Among those writing studies of medicine and therapeutic practice, Cheryl Mattingly is, on my reading, the most elegant and insightful interpreter of clinical scenes. No one else can describe so well the drama, dance, and dialogue between all types of clinicians and their patients, including families. The depth and breadth of this ethnography are extraordinary, going from micro interactions to demographics, from small rooms to cityscapes. Mattingly’s 'narrative phenomenology' holds these potentially disparate strands together"Arthur W. Frank, author of Letting Stories Breathe: A Socio-Narratology
"Mattingly’s book achingly reveals the possibilities and limits of a blues hope’ that rallies critically ill, low-income African American children, their families, and, yes, even some clinicians, to enact ephemerally life-sustaining dramas against a backdrop of sober medical prognoses. We are ushered inside clinical borderlands’ where misunderstandings among familiar strangers’ have pernicious outcomes. Clinical borderlands are fraught with culturally shaped clashing genresineffective parental reports of symptoms, cryptic medical charts, and clinician accounts that cast doctor as sleuth, illness as battlefield, and body as broken machine. Yet, out of this array, borders are sometimes crossed, clinician-family partnerships formed, and a hopeful future opened through heroic acts that become re-experienced as life-transforming narratives." Elinor Ochs, Professor of Anthropology, UCLA
From the Back Cover
"Among those writing studies of medicine and therapeutic practice, Cheryl Mattingly is, on my reading, the most elegant and insightful interpreter of clinical scenes. No one else can describe so well the drama, dance, and dialogue between all types of clinicians and their patients, including families. The depth and breadth of this ethnography are extraordinary." ARTHUR W FRANK, author of Letting Stories Breathe: A Socio-Narratology
"Mattingly's book achingly reveals the possibilities and limits of a 'blues hope' that rallies critically ill low-income African American children, their families, and, yes, even some clinicians, to enact ephemerally life-sustaining dramas against a backdrop of sober medical prognoses." ELINOR OCHS, University of California, Los Angeles
"The Paradox of Hope shows how clinicians, families, and patients employ hope in their illness narratives and treatment stories, and indeed, in their lives in general. A serious and revealing ethnographic exploration of hope as the making up of life." ARTHUR KLEINMAN, Harvard University
Most helpful customer reviews
0 of 0 people found the following review helpful.
It was a fascinating experience reading this book while living ...
By Josephine Ensign
It was a fascinating experience reading this book while living in a 'borderline' of a hotel in downtown Los Angeles, amidst many of the public hospitals that are the settings for the clinical narrative dramas portrayed in Mattingly's book. While Mattingly's research mainly focuses on the interactions between occupational therapists and impoverished African American families struggling with care for a child with a chronic illness (such as sickle cell disease or cancer), her inclusion--somewhat obliquely--in this book of home health nurses is intriguing. She calls them some of the 'most liminal' and 'most hated' of all health care workers, but doesn't elaborate much on that blanket statement. She does make the very important case for how we use 'Othering' language in health care when we use the stigmatizing language of 'non-compliant patient,' but also when we use terms such as 'overwhelmed parent' or even 'heroic mother.'
3 of 3 people found the following review helpful.
wonderful
By Mary-Denese Holmes
thought filled and thought provoking, very comprehensive. Work is compassionate and thoroughly researched, very relevant for work in this field
0 of 3 people found the following review helpful.
In one word: Nope
By samantha
Dear Lord kill me, I barely made it through this book alive. I had to read this for a medical anthropology class, and by chapter 3 I was begging Mattingly to stop repeating the same claim over and over and over again in different words. Like we get it, stop...please...
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